The Children's Hyperinsulinism Fund was started up by Dr Khalid Hussain, Nicky Mumford, Adrienne Burton and Julia Killengray in 2003 with Ginnette Flinn and Clare Gilbert joining soon after. The reason the Fund was set up was due to the fact that absolutely no research was being done in the UK for this condition. As a consequence of there being no research in the UK and little elsewhere, families of children with this condition have little hope of finding a cure or are unable to have many questions answered.

The severity of this condition cannot be ignored and research is desperately needed if the risk of brain damage or even death is to be avoided. Many children with this condition are very difficult to manage medically and families face a lifetime of frequent blood glucose monitoring, long-term treatment with drugs and difficulty in feeding which may require a nasogastric tube or a gastrostomy.

Many of the children end up having an operation to remove the pancreas, this then leaves the risk of developing diabetes mellitus and malabsorption of food. The Fund wants to be able to give families the hope of a better life for their children.