Hi, my name is Julia Killengray and I am the mother of Ellie and Tate. They both have Congenital Hyperinsulinism (CHI) or you may know it as PHHI (Persistent Hyperinsulinaemic Hypoglycaemia of Infancy) or Nesidioblastosis. You can read their story in 'Children's Stories'. In 2000, I set up a support group for this condition and approximately every 1-2 years we have a meeting for parents to have the chance to meet and share experiences. We also meet the doctors and are able to ask them questions after their presentations which we find very helpful. I also endeavour to keep parents who have joined the group up to date with anything new that is going on with CHI.